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Genetic test ban awaits Senate nod

Australia is close to banning the use of genetic test results in life insurance underwriting after proposed laws cleared the House of Representatives last week.

Draft legislation is now before the Senate, where a committee has recommended the reform be passed.

“Evidence to the committee suggests Australians’ concerns about the use of their genetic information is well-founded,” the committee said in a report last month.

“Despite the benefits of genetic testing, submitters highlighted that Australians are concerned that genetic test information could adversely impact their access to life insurance.”

One submission, from the Association of Superannuation Funds of Australia, said research from 2021 indicated about 10% of people who disclosed genetic test results had insurance offered on less favourable terms or were declined.

The committee heard genetic testing “has an important role in preventative health, the identification of effective treatment options and in medical research. In particular, submitters highlighted the important role of genetic testing in healthcare and how confidentiality concerns can deter people from accessing such testing.”

Financial Services Minister Daniel Mulino says the Treasury Laws Amendment (Genetic Testing Protections in Life Insurance and Other Measures) Bill 2025 “gives Australians the confidence to undertake genetic testing without worrying about the effect on their access to affordable life insurance. This bill will make a meaningful difference to people’s lives.”